Thursday, February 2, 2017

Little by little, we have a treatment plan

I woke up this AM a little nauseated, but not bad. On a scale of 1- 10, with 10 being the worst, it was about a 3.  The medication works pretty quickly, so I was functioning after about 30 minutes.

Then we left for the oncologist's office for the last visit of the week, for hydration and to finalize a treatment plan that works for all of us.

We have decided I will have a baseline PET scan this week, then complete a 6-week cycle of treatment. Then I will have a repeat PET scan to see if we are making progress.  If we are making progress, I will take a short break and go home to Honduras. I will then come back to Ft. Lauderdale and start the process again.

This keeps me with one set of doctors rather than juggling care with two groups.  It gives Elisa and her family a break from us and vice versa.  I can have faith that I'm getting the same quality of care and meds.

We are just in the beginnings of this mess, and already it is apparent that it is going to take a toll on all of us.  Both of use are a little edgy.  Juan is not used to taking care of me completely, and I am not used to needing round the clock card to do even the simplest things. 

Elisa's family routines are interrupted.  Victoria has made herself a "studio apartment" with an air mattress, shelving, a lamp, and other comforts of home in a corner of the living room.  I'm sure she misses her privacy.

So far we are making it work.  We have your prayers.

We are blessed.

1 comment:

  1. Okay, now that there is a plan (at least "A")Ii feel a little better just knowing time frames, etc. I am most definitely happier that you're going to do the majority of care up North. Sorry, my darling - I know you want to be in your home but it really is at the end of the road..... Is there any option for temporary housing for you y Juan? Like they have R.McDonald houses for families of sick kids. Is there a cancer care community that you can tap into for support and info on coping, housing, etc.? Also, what about having someone in part time to physically help you while he (and Elise, etc) have a break? And all of these questions are not for you to work on!! Ah, darling Patty, I'm so sorry..... I do understand - both your side, and Juan's side of the situation. Have I told you today that I love you? Jejejeje, Hugs, Stephanie