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Wednesday, February 1, 2017

Drip by Drip

I didn't post yesterday, because, well, because yesterday was a rotten day.  The only two good things that happened yesterday were 1) I started the Fentanyl patch; and 2) I survived it.

Today was a different story.  I woke to very little pain and I was able to get out of bed without help.  That was a wonderful feeling.

I got to chemo ten minutes late, but it didn't seem to bother anyone.  After a few minutes I was lead to a room lined with huge, wonderful recliners and some of the most positive people I have ever met.  And those were the patients.  Everyone appeared happy and wanting to get on with life.

We finally got the solutions running, four different meds, one at the time. First was a medication to get my body ready for the shock of chemo, the second for nausea, the third the chemo itself, and the last one a bone builder.  It really wasn't bad, it just took 3½ hours. 

We came home, I took a nap, and I awoke almost completely pain free.  I was a little nauseated, but took a magic pill, and thirty minutes later I was eating a big supper and drinking coffee.

I go back tomorrow for hydration and a visit with the oncologist.  Then I do another chemo on Wednesday.  So far, so good.

I have a great family, doctors I trust, a super support network, and an awesome God.

I am blessed.


Monday, January 30, 2017

Step by Step

Today I went to visit the oncologist, Dr. Zafar, and set up the treatment plan.  It was scary.  I will lose my hair, what little bit I have.  There is a chance it will make me nauseated, and I start it Wednesday.

Dr. Zafar uses cisplatin in conjunction with another drug which I can't remember.  I will take it IV once a week for 3 weeks.

I used the walker last night to get from the bed to the bathroom, and it was a challenge.  I'm thinking more and more I should bring the Scooter in and use it.  

At least Dr. Zafar seems to understand that I can't fight the cancer if I am fighting the pain, so she wrote me a prescription for  a Fentanyl patch, which she wants me to use along with the Percocet I already have.  Of course, when Juan went to the pharmacy, they wouldn't fill the Rx because they say she didn't put how many patches to dispense.  Sooo, the pain control plan has been delayed until I can go by her office tomorrow.

This pain I am having is incredible.  It is a result of the pelvic fracture, and it feel like I have a knife sticking in me from just above my left gluteal fold to hip level.  It is intense.  I would rather have babies.  

Then there is that pesky referred pain that goes down my left thigh every time I make a step. And the spasms in my bladder which are pretty much under control.

The bleeding from the cancer seems to have stopped for now, and my hemoglobin has risen from 10.3 to 11.2. That's a good thing.

Tomorrow, I have an appointment with my PMD, Dr. Hirsch, so he can write all my referrals and get permission from the insurance company to start the chemo.

This has nothing to do with my journey, other than it's an aggravation I don't need.  When we picked up our rental car at the airport, we were told we could return it to any agency without a drop off fee.  We were also told we could extend the lease at any agency...NOT.  I did get the lease extended online, but we do have to return it to the airport.

Today has been rather stressful, but it ended up with good company, around a fire pit, eating S'mores.

I am blessed.


Sunday, January 29, 2017

Day By Day, A Litte at the Time

Imagine going to the ER for one thing, and finding out you really have something else. What if that other thing is cancer?

Macho Man and I found ourselves in just that situation this week.  Tuesday morning while the medical staff was working me up for a broken hip the found that was the least of my worries, because what I really had was a broken pelvic bone caused by a big, ugly Stage IV bladder cancer that has spread to the bone.

I am at my daughters home now, after five days of exhaustive testing to find out where we are now, and where we are going.

Where we are is pretty simple.  I have bladder cancer.  It is Stage IV, with metastasis to the left pelvic bone.  It is inoperable, because of the overgrowth of blood vessels, making it very possible I might bleed out during surgery.  There is nothing we can do with the left hip fracture until we can do something with the cancer.

Where we are going is something else.  Monday I meet with the Oncologist to work up my  chemo and radiation treatment plan.  Then I have to meet with the Pain Management Team, to work out my pain meds, keeping in mind that I can't get some of the pain meds they use while I am in Honduras.

Right now the overview is that I will start chemo and radiation here in South Florida, then continue treatment in San Pedro Sula.  I will go the chemo route as long as it seems to be shrinking the cancer.  When it is no longer working, I will stop and let go.

We are all grieving in our own way.  I am at peace with the diagnosis.  I am not afraid of dying.  I am afraid to leave Macho Man.  Thirty-one years with him, and  I'm not ready to leave my life as it is.

I want to see Victoria finish her education, get married, have babies.  I want to have a good relationship with my granddaughter, Rachel.  I haven't seen Rachel, to be with her, in over twenty-five years.  I want to meet her children.

There are so many things I want to do,  places I want to go, things I want to see.  And I'm going to do and see some of them.

Macho Man has been so wonderful helping me with everything, from getting a shower to getting to the dinner table.  He holds me tight when the pain attacks and will not let me go. And he cries when I cry.

I will fight day by day, step by step.  One of the ways I will fight is to update you when I can.  I invite you to take this journey with me.

I am blessed!




Thursday, February 25, 2016

In August I wrote about The Trujillo Pet Project as we were getting started.   Since then we have held a Vaccination Clinic in El Parque Central the third Saturday of every month.  We have grown from just four dogs to as many as eleven.

This weekend we not only had a Vaccination Clinic, we had a two-day Spay/Neuter Clinic with the help of Dr. Santiago Soto, a veterinarian from Roatan.  We were able to spay and neuter several cats and dogs.  Dr Soto also did two cancer surgeries and debrided and sutured an infected, old laceration on one dog.  He checked several sick animals and advised their owners on how to care for them.  We supplied needed medications at well below cost.

For our Spay/Neuter Clinic we were allowed to use a classroom at INFOP, a local school.  As an operating table, we were using a folding table set up on paving blocks, which was what we had available.  We need an operating table, and Macho man can build us one for under $150 USD.  Now,  we just need to raise the money.
The INFOP Logo.  We were fortunate they allowed us to use a classroom.
The waiting room

Nelda Barrett and Dr. Santi Soto doing surgery to remove a cancer from a dog's tongue and from around its carotid artery. Note our operating table.  Those are paving stones from the street project we used to raise the table for Dr Soto.
Jackie Lozinsky and Dr. Soto, with a family of very happy kitty owners.  Both kitties were spayed and came through the surgery without any problems
We are providing much needed services at a greatly reduced price to people who cannot afford to travel 2½ hours to the nearest veterinarian.  The difference between what we charge the people, what the vet charges, and the cost of supplies is paid out of the donations you give, and out of our own pockets. The suture material alone this weekend ran about $200. Then there were medications, anesthesia, gloves, gauze, antiseptics, cleaning materials, etc. 

We want to do another Spay/Neuter Clinic in April, but we need help to keep this up. Most of us are retired and have limited funds.  If you or a group you belong to are looking for a good cause to sponsor, this is a good cause.  Even the smallest amount goes a long way and helps a lot of people and their animals in our community.  If you can make it a monthly amount, that would be wonderful.  If it is only a one time amount that will be wonderful, too.  We appreciate all the help you give.

In the interest of full disclosure, I had about the most fun I have had in Honduras in the past six years. I was able to use skills assisting the doctor that I have not used since I stopped nursing.  It was a surprise to me how quickly they came back.  

We were blessed to have Dr. Soto with us this weekend.


Sunday, January 24, 2016

Macho Man's Phone Was Stolen...Or The Keystone Kops, Honduran Style

Macho Man had his phone stolen yesterday, right out from under his nose.  It all started when a woman came through the drive and went around to the front of the house, saw him there and started a conversation about needing a job.  He told her we didn't have any work, but later in the year we might need someone one or two days a week to help in the house. 

He laid his phone down on the window sill and started back on the carpentry job he was doing when he suddenly saw her putting something in her pocket and running out of the yard., so he took out running after her.  One of the neighbors saw what was happening and started chasing the woman. I am peacefully enjoying my afternoon nap.  

Juan came back to the house and ascertained that the only thing missing was his phone,  In the meantime, the neighbor was calling everyone he knew on speed dial, and since he knew the woman, knew her habits, etc, was able to give his friends a name and a description,  While all this was going on, the other neighbors were alerting all THEIR friends, and the hunt was on.

Juan and the neighbor were receiving minute by minute reports of the woman and her boyfriend's progress, as they made their way out of our barrio and into El Centro, on their way to Rio Negro. That's when one of our nephews saw the car, but didn't see Juan in it, so he decided the car had probably been stolen, called four other nephews and headed to the house.  Meanwhile, I am still taking a nap.

I heard the nephews when they came to the door, but they were yelling "Tio!", and I thought he was downstairs and I ignored them..  Remember, I AM taking a nap.  When nobody came to the door, the nephews decided that the car had been stolen and we were probably in the house tied up and gagged, or maybe dead, so they climbed the balcony and came in the front door.  I was still trying to sleep.  

The oldest nephew yelled something about,  "Where is my Tio?" and I said, "He's downstairs, I think.", at which point they took off down the stairs like a herd of elephants, looking for Tio.  They came back up the stairs and took off, and I continued to take my nap.

Through the use of  the ever so efficient native grapevine, Juan and his friend and another friend with a car not only found the woman and her boyfriend in Rio Negro, but surrounded them.  The neighbor demanded that she give him the phone.  At first she denied having the phone.  He became a wee bit more forceful, demanding the phone again, and this time she gave it up.  He took the back off, which I would never have thought to do, and saw she had removed the chips, so he demanded the chips back.  Again denial, another threat, and he had the chips back in the phone.

By now, she is hysterical and begging for forgiveness.  The boyfriend throws her under the bus by loudly proclaiming that he had no idea the phone was stolen; she told him she found the phone on the road.  The neighbor now declares that Juan is HIS Tio and as such is under the protection of the barrio and if she is EVER seen in the barrio again, she will pay a steep price.  I'm still taking a nap.

Later, when I join Macho Man outside for our evening rum and Coke, he casually informs me, "I had quite an adventure this afternoon while you were taking a nap."

We are blessed with good neighbors and friends.

 



Friday, August 21, 2015

Trujillo Pet Project



We have a real problem here in Trujillo with animals, especially pets, not getting proper veterinary care, and some no care at all.  Some of this is due to lack of knowledge; some is due neglect, and some is due to poverty.  Add to that the fact that we have no local veterinarian, and you can see that this is exponential in scope.

It is for this reason that the Trujillo Pet Project was born.  This is the brainchild of my friend, Jackie Lozinski.  I am fortunate enough that she asked me to be in on the ground level. Jackie is a young woman who, in another life, was a Canadian Animal Welfare Investigator.. Her main concern in that life was the enforcement of animal cruelty laws.  She has a deep love of animals, as do I, and as do many of the expats here in the area, American and Canadian.

We are not a rescue project, as such.  None of us really have the facilities to foster animals. Our main concern is health care.  We want to focus on providing low cost health care, especially spaying and neutering, vaccinations, and regular vet visits.  Another goal is educating the young people on the importance of  taking care of their pets as if they are members of the family.

Here in my own neighborhood of Buenos Aires we have dogs who know which families put out left overs, and even what time they are usually put out.  They make the rounds from house to house; and if they they don't find food at one house, they just go on to the next. Some of these dogs are feral.  Others have owners who apparently don't feed them.  

They are tick infested, flea infested, and are many are mangy.  Some are so skinny you can count their ribs.  Venereal cancer is very prevalent. Venereal cancer is easy to treat and to stop in its tracks.  If you spay the female, she will not go into season and will not accept a male.  This stops the cycle of disease. This is one reason spaying and neutering are so important. These are the animals we want to reach.

We are lucky enough to have the support of Dr. Eugenio Calderon, a vet in La Ceiba.  He has been gracious enough to let us into his office to measure his exam tables and his operating table, take pictures and measurements, and advise us on several things we need to know.  He has also said that after he has a new vet in his office he will consider coming to Trujillo once a month to hold a veterinary clinic for general care, and to spay and neuter as needed.   

We have been blessed with the addition to our list of supporters of Dr. Claudio Mayorga and his group from Nicaragua, who are coming next month for a meeting to see if they can help us in meeting some of our goals.  They will add us to a list of missions they perform every year by going to poorly served areas and providing low cost or free spay/neuter clinic.  I am really dreaming that we might get someone from his group   to move to Trujillo and open a practice.

We are having our first vaccination clinic on September 15 in the park in downtown Trujillo. It is Honduran Independence Day, and we will set up a dining fly and give 5-in-1 vaccinations for L50 (about USD $2.50).  This will not include rabies vaccine, because the government provides that free of charge.  This is the shot for distemper, parvo, etc.  Our first neuter/spay clinic will be sometime after the start of the new year, probably in January

Here comes the pitch, and don't say I didn't warn you there would be one.  We need to raise about $1,500 between now and the first of the year.  We need about $500 of that over the next couple of months so we can buy the materials to build the exam tables and operating tables.  If you can donate as little as $5.00, that will go a long way toward providing care for a deserving animal.  You can donate to me on PayPal by using my email address, stonewondercloud@live.com.  As soon as we can get a web page up and running I will have a PayPal button you can click on that will take you directly to PayPal.

Please visit our FB page Trujillo Pet Project , and like our page if you haven't already.


Saturday, May 24, 2014

An Unfortunate Show of Force

I am fortunate enough to live an idyllic life in a beautiful country in Central America.  I am ever mindful that I am a guest in this country, and that I could be asked to leave at any time.  I rarely ever criticize the government here.  I frequently tell you how safe I feel with the military/police presence.  But this time, I just cannot keep my mouth shut.

We have had some civil unrest here in Trujillo over the last week between the residents of a small village, Castilla, and the combined forces of the National Police and the Honduran Army.  Castilla is a small Garifuna village just outside Puerta Castilla, the deepest deep water port in the Americas.  

The Garifuna are Black Caribs.   They are the descendants of Africans who escaped slavery and the indigenous Indians.   They depend on the land to grow food, and they are primarily fishermen.  They have their own language and their own culture.  They hold all land as community tribal land, and it cannot be sold to outsiders without the approval of all the villagers. They are also second or third class citizens, and they are frequently taken advantage of.

About five years ago, the Government decided to expand Puerta Castilla.  They made a deal with the Garifuna that included 250 new homes for the villagers, parks, and other improvements in exchange for the land.  The Port got expanded, but the homes, parks, etc., well, the village is still waiting, and not the first spade of dirt has been turned over.

This past week, after years of not being listened to, to being ignored, the Garifuna decided on a course of action, including civil disobedience, and they blockaded the port.   On Wednesday there was a confrontation that lasted about 2 hours, it ended without injuries, even though there was some tear gas involved.

The National Police and some  of the leaders of the demonstration

We demand that the government repair Highway CA 13.  We demand it pays for potable water.

The blockade
On Thursday the Port Authority, the Mayor of Trujillo, the Senator from Trujillo, the leader of Castilla and a committee of community leaders met at the Port to discuss solutions to the problem.   Apparently, the Garifuna did not accept the solution, or maybe they just didn't believe the Committee was going to do anything, because .....




The Committee

On Friday, all hell broke loose...


Note  He is not firing at the barricade, he is firing into the village

You can see the tear gas

Some of the victims were elderly

Some were babies

Most  were innocent bystanders.

Some took to the water with their children



All photos are courtesy of Trujillo Noticias, Marvin

There were no winners here.